Rights:
- It is my right to receive medication regardless of my health condition and its progression.
- It is my right to have a law that protects my rights in the workplace.
- It is my right to continue my work.
- It is my right to be employed, and my challenges should not hinder my contributions.
- It is my right to develop in my work like any other unaffected person.
- It is my right to take medication, and my humanity should not be compromised.
- It is my right to be issued a certified card reflecting my medical condition (e.g., some MS patients have unbalanced walking which increases the likelihood of security questioning).
- It is my right for MS patients to be classified under a category of "serious illnesses" allowing for early retirement if the condition worsens.
- It is my right to be granted medical exemptions, customs exemptions, and exemption from worker residency to facilitate a dignified life.
Every MS patient has a unique condition, so we cannot generalize, hence laws must be fair and address each case according to its circumstances and requirements.
Together... we work to achieve the vision...
Awareness:
- MS Patients: Work on internally fortifying them to face challenges and societal pressures through forming a guidance center that supervises and oversees all supporting programs such as: counseling, support group, friends, open your heart group, therapeutic music programs, yoga, meditation, etc.
Workplace: The workplace must be aware of the condition of MS patients, understand their suffering, and deal with them to ensure their continuity in work and productivity. This is achieved by forming a committee whose goal is:
- Monitoring employers.
- Monitoring the enforcement of laws to protect them from dismissal or deprivation of career advancement.
- Reducing working hours.
- Avoiding exposing them to any stress.
The specificity of the condition of MS patients... is our reference.
Community: Thoughtful and accurate awareness that cares about the specificity of MS patients through a specialized awareness committee. We don’t want a shameful and sad image, but a strong image seeking the best and most suitable solutions for their challenges.
Services: The service revolves around:
Hospitals: Agreement with hospitals to provide services to MS patients in Jordan, so they can find assistance from the nearest hospital to their place of residence. Work on ensuring a suitable and comfortable place for MS patients in all hospitals, whether government or private. The service is fast and immediate without subjecting MS patients to the hardships of waiting and diagnosis...
MS Patient Service Committee: We will work on forming a committee of volunteers whose objectives are psychological support and service to the patient. This committee visits the patient and examines them to know what they need, not only during attacks but also on ordinary days where the patient often experiences depression and psychological pressures. It will be organized with priorities according to the condition of MS patients.
Ministry of Development: Cooperation with the Ministry of Social Development to achieve our goals.
Medicine: Work on facilitating the procedures for dispensing and receiving medication. Work on canceling medical committees that are held every six months !!!
Consultative Center: Establish a consultancy center whose aim is: Monitoring studies and research and all new and scientific and useful developments for MS patients. It is a specialized center for conducting studies and statistics for MS patients in Jordan with the help of specialists in this field, scientific research, and maintaining continued cooperation with neurologists. Any funds will be allocated for social service, material assistance, medical devices,
We... a team... working together You will have an active role in achieving your goals We work together to accomplish together... to ensure our continuity.....